NYC Needs Assessment & Action Plan

The NYC Long COVID Needs Assessment and Action Plan (NAAP) is a major research and advocacy project designed in partnership with our Long COVID Justice NYC chapter. The NAAP will focus on people with Long COVID from highly affected communities whose needs have largely been overlooked, including monolingual Spanish speakers, people living with HIV, trans and non-binary people, and children/youth.


Armed with data and a growing alliance of local, state and national groups, we will insist on our rights to medical care, financial and other support, workplace and school accommodations, and an end to bias in healthcare systems.

This project was launched in October 2023, and is funded in part due to a generous grant from the New York Health Foundation.

 
Text: " 'The Long COVID Justice project has kept a relentless focus on the needs and voices of those who have largely been left out of conversations shaping Long COVID research, diagnosis, and treatment.' – David Sandman, Pres/CEO NY Health Fdn
 

Project Highlights

The Action Plan component of the NAAP will include the creation and distribution of health education materials with clear, non-technical language on topics like: tests, treatment, and self-care; tips for talking to your medical providers and sharing recent research with them; real world tips for resting and pacing, managing work and school, and asking for accommodations. This will include additional resources for highly affected communities like monolingual Spanish speakers, people living with HIV, trans and non-binary people, and children/youth.

Long COVID Is A Trans Issue is an ongoing series that provides resources and support for trans and non-binary communities facing high rates of Long COVID. This series is coordinated by our central project, Long COVID Justice and can be found on their website.

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