Long COVID advocates testify at first-ever Senate hearing

Strategies for High Impact (S4HI) and its Long COVID Justice project are joining with other advocates to tell Congress that it is beyond time to take action on Long COVID and associated diseases (LCAD).

Long COVID Justice started the new year by meeting with staff from the U.S. Senate HELP Committee as they prepared to host a hearing on Long COVID. At the January 19th hearing, patients, other experts, and a parent of a child with Long COVID shared their experiences and demands, including the need to recognize health disparities for BIPOC and LGBTQ+ communities who face disproportionately high levels of LCAD. The hearing and overflow rooms were full of advocates – including Long COVID Justice co-founder Gabriel San Emeterio – all wearing K/N95 masks.

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People with Long COVID Urge NIH: Fund Vital, Comprehensive Long COVID Treatment Research, Not Debunked, Dangerous Approaches

Three years into the ongoing COVID pandemic, an impassioned, growing group of patients and advocates for Long COVID and associated diseases (LCAD) is urging NIH to prioritize full funding of strategic research on therapeutics and to immediately halt plans to fund two problematic studies in the initial set of trials under the RECOVER Initiative.

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